I wanted to give a small update last week around Thursday or Friday because I was over the half of the treatment (external radiation and chemo, internal radiation is the next step). This is a significant moment I thought. I had gotten three chemo shots 🙂 (I call them shots now because I get a little bit high in the head when I get them) and I got the thirteenth radiation on Friday (of twenty-five in total). But the intermediate update became this ‘later’ update due to the fact that I reached the point of feeling 200 years old this last weekend.
Everything was going fine after my chemo Tuesday. I felt rather good. I thought it was a good start of the week so I decided to stay active as the doctor had told me to do. I went to the city with my bike to have lunch with my Dutch friends who visited from Holland on Thursday. My speed was only two miles/hour but physically it felt like I was Lance Armstrong that just finished the tour! I’m lying, sorry Lance, even then you probably felt better then I did that moment :-)) Nevertheless it felt good to be outside. On Friday I figured I’d do the same and make a tour in Leuven. I needed some things and was feeling ok, so why not? In total I was gone about two hours, driving my bike, walking, shopping, resting, resting, resting, resting, resting and resting. By the end of my treatment I think I will have used every bench in the city long enough to write a review about them 🙂 When I came home I took a small nap before my daily radiation.
On Saturday I had a huge repercussion! Let’s call these actions of mine TTA’s (typical Tahon actions, actions that are not very smart or to much) . Why did I have to overdue it on Friday? Really? So of course I got punished! Saturday was extremely shitty. One of my friends came to pick me up for the radiation and afterwards we went to a cozy afternoon with friends in their garden. It was a beautiful day and there I was hanging in a chair with a blanket having hardly the energy to engage in the conversation. (hanging is my new standard position to take when sitting in a chair and I have the perfect excuse to do so and look like bum) There in the garden I looked like an old Romanian woman :-). Too bad I don’t have a picture… I didn’t stay very long, it was too exhausting. At home around 1800hr I fell asleep for the rest of the evening and night. I slept around 16 hours. The day after on Sunday I thought I felt better but going from my sofa to the kitchen made me take a rest in the kitchen before doing the next thing. I figured this was really very hard and not normal. I found myself minus 400% of my normal physical condition. And it is not a real fatigue that I feel. It is just the body saying: “No, too much, stop, rest.” I don’t have a lack of oxygen or so, it is very strange and difficult to explain.
Monday same story. While doing the ten minute walk to the radiation I had to go sit down FOUR times!! Can you imaging the shame 🙂 FOUR times!! Grrrrrrrr, this wakens up a monster inside me!! I do not like that!! But man I am happy that I see my couch again afterwards! Blessed feeling that is!
Luckily I was still hungry. I put eating as my priority. I don’t want my body to fall out of energy to fight. Even if I’m not really hungry I stuff it in anyway!
So let’s say it wasn’t a representative week either. That leaves me with two weeks to have the week that I had in mind because I’m still going for that one of course! And in the meantime I still have my Julius hugs in the morning to make me feel better every day.